Long-term effects of glucocorticoids on function, quality of life and survival in patients with Duchenne Muscular Dystrophy: a prospective cohort study; Lancet 2018; 391: 451-61.
Clinical Outcomes in Duchenne Muscular Dystrophy: A Study of 5345 Patients from the TREAT-NMD DMD Global Database - J Neuromuscul Dis. 2017; 4(4): 293–306.
Interleukin 1 receptor-Like 1 protein (ST2) is a potential bio-marker for cardiomyopathy in Duchenne Muscular Dystrophy; Paediatric Cardiology 2017: 38: 1606-1612
Association study of exon variants in the NF-kb and TGF B pathwaysidentifies CD 40 as a modifier of Duchenne Muscular Dystrophy: American Journal of Human Genetics 2016: 99, 1163-1171
Prednisolone / Prednisolone and Deflazocort regimens in the CINRG Duchenne natural history study, Neurology 2015;85:1048-1055.
The TREAT-NMD DMD Global Database: Analysis of More than 7,000 Duchenne Muscular Dystrophy Mutations. HUMAN MUTATION, Vol. 36, No. 4, 395–402, 2015
CINRG Duchenne Natural History study demonstrates insufficient diagnosis and treatment of cardiomyopathy in Duchenne Muscular Dystrophy;Muscle and Nerve 2014: 50 (2): 250-256
The TREAT-NMD Duchenne Muscular Dystrophy Registries: Conception, Design, and Utilization by Industry and Academia : Bladen,C. L., Rafferty, K., Straub, V., Monges, S., Moresco, A., Dawkins, H., Roy, A., Chamova, T., Guergueltcheva, V., Korngut, L., Campbell, C., Dai, Y., Barišić, N., Kos, T., Brabec, P., Rahbek, J., Lahdetie, J., Tuffery-Giraud, S., Claustres, M., Leturcq, F., Ben Yaou, R., Walter, M. C., Schreiber, O., Karcagi, V., Herczegfalvi, A., Viswanathan, V., Bayat, F., de la caridad Guerrero Sarmiento, I., Ambrosini, A., Ceradini, F., Kimura, E., van den Bergen, J. C., Rodrigues, M., Roxburgh, R., Lusakowska, A., Oliveira, J., Santos, R., Neagu, E., Butoianu, N., Artemieva, S., Rasic, V. M., Posada, M., Palau, F., Lindvall, B., Bloetzer, C., Karaduman, A., Topaloğlu, H., Inal, S., Oflazer, P., Stringer, A., Shatillo, A. V., Martin, A. S., Peay, H., Flanigan, K. M., Salgado, D., von Rekowski, B., Lynn, S., Heslop, E., Gainotti, S., Taruscio, D., Kirschner, J., Verschuuren, J., Bushby, K., Béroud, C. and Lochmüller, H. (2013),. Hum. Mutat., 34: 1449–1457.
cooperative international neuromuscular research group Duchenne natural history study--a longitudinal investigation in the era of glucocorticoid therapy: design of protocol and the methods used, McDonald CM1, Henricson EK, Abresch RT, Han JJ, Escolar DM, Florence JM, Duong T, Arrieta A, Clemens PR, Hoffman EP, Cnaan A; Cinrg Investigators – Viswanathan V - Muscle Nerve. 2013,Jul;48(1):32-54.
Randomized, blinded trial of weekend versus daily prednisone in Duchenne muscular dystrophy, Diana M. Escolar, Lauren P. Hache, Paula R. Clemens, Avital Cnaan, Craig M.McDonald, Venkataraman Viswanathan, Andrew Kornberg, Tulio E. Bertorini, Yoram Nevo, Timothy Lotze, Alan Pestronk, Monique Ryan, Eugenio Monasterio, John W.Day, Angela Zimmerman, Adrienne Arrieta, Erik Henricson, Jill Mayhew, Julaine Florence, Fengming Hu, and Anne Connolly, Neurology – 2011Aug 2;77(5):444-52.
Randomized double-blind controlled study to compare efficacy and tolerability of standard daily prednisone regime with a novel intermittent high dose regime in ambulant boys with Duchenne Muscular Dystrophy (DMD). Escolar, DM, McDonald, C, Viswanathan, V, Korenberg, AJ, Bertorini, TE, Nevo, Y, Lotze, TE, Ryan, M, Clemens, PR, Monasterio, E, Leshner, RT , Pestronk, A, Morgenroth, LP, Zimmerman, A, Arrieta, A, Abresh, T, Henricson, E, Mayhew, J, Florence, JM; Duong, T, Hu, F, Nei, L, McCarter, R, Connolly, A, and the CINRG group presented at the American Academy of Neurology Conference in April 2008.
Research Center for Genetic Medicine at the Children's National Medical Center (CNMC)
Ongoing programmes at CINRG site, India
Ongoing programmes at CINRG site, India
We thank you for logging on to this page of our site!
Greetings Sir/Madam/Child,
We thank you for logging on to this page of our site!
Being an association working for the betterment of the children with Muscular Dystrophy, support from generous donors and sponsors like you will make our efforts advance and prove fruitful.
We are thankful to those Donors and Sponsors of the past who have helped us reach this far.
Here are some ways for you to help us at will:
You think it’s a noble cause?
Then…. make a Donation!
If you prefer something material than monetary support will help the affected children, then go ahead to sponsor a Wheel Chair.
If you prefer to contribute towards the enhancement of facilities in Research &Development or diagnosis of Muscular Dystrophy, please do so.
Well if you prefer to spend some time with children, entertaining them, then spend on or sponsor an Event or Camp based on the Calendar of the Association or after a consult with us.
This is an opportunity for Business Houses and Firms like yours to sponsor an association with a noble cause.
If you would like to sponsor our association, kindly fill in the details below and we would be grateful to contact you regarding the procedures.